Worrying times

Dman666

Member
Messages
250
I know that it’s very worrying times for all concerned but I have to go to hospital to do my treatment and the hospitals locally are all on closed doors due to infections,really worrying how I can do my treatment as safe as possible ...sorry if it’s babbling on but needed to get it out my head somewhere ...
 

Oneball

Member
Messages
2,525
Hey Dman, I know what you’re going through I was at the doctors last week and fortunately it was deserted however I’m going to have to go back this week and likely be referred to a consultant in a hospital. Like you I’m concerned not only about Covid-19 but also it’s effect on the treatment of other possibly fatal conditions.

I hope you can speak to your hospital and perhaps they can give you some reassurance or come up with a treatment regime that suits the times.
 

Dman666

Member
Messages
250
Hey Dman, I know what you’re going through I was at the doctors last week and fortunately it was deserted however I’m going to have to go back this week and likely be referred to a consultant in a hospital. Like you I’m concerned not only about Covid-19 but also it’s effect on the treatment of other possibly fatal conditions.

I hope you can speak to your hospital and perhaps they can give you some reassurance or come up with a treatment regime that suits the times.
Yeh going to call them Monday as I’m not feeling safe staying on the ward for 5hrs during treatment ...
 

iainw

Member
Messages
3,241
You should call for advice first thing Monday morning. It’s a very worrying time for all, but I really feel for you if you have existing medical problems. There isn’t great guidance at the moment - but most hospitals are cancelling any elective surgeries and non life saving treatments. If you do go in, wear a mask if you can, take alcohol hand gel and wash your hands before and after touching anything - and stay 2 m away from anyone non essential!
 

Dman666

Member
Messages
250
I have no white blood cells,no immune system due to missing gene so I have to go somewhere to have treatment it’s just the where that’s the concern ....cannot not skip treatment as it’s every. 3 weeks also so problem will be there each time as this gets worse
 
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5,228
I have no white blood cells,no immune system due to missing gene so I have to go somewhere to have treatment it’s just the where that’s the concern ....cannot not skip treatment as it’s every. 3 weeks also so problem will be there each time as this gets worse
Hello mate
My late wife had a similar ailment
It was called something like Hypergammaglobularanemia.
Anyway she had no white blood cells too and was therefore prone to colds flu etc. A cough for me was a major concern for her. She had weekly infusions at the local hospital of white blood cells which topped her up. An alternative was offered for self injection at home into the tummy maybe 3 x a day. You could see if this is an option. We did not try it
At the time it was a rare infliction and she was one of eight in the country.
BTW she did not die from this ailment as it was manageable
pm me any time or phone etc.................. best wishes
 

lozcb

Member
Messages
9,641
Lets hope all goes well for you , heed the safety advice above is all you can do , lets us know the day before you go in and i'll have a word with him up there and say a prayer for you
 

Dman666

Member
Messages
250
Hello mate
My late wife had a similar ailment
It was called something like Hypergammaglobularanemia.
Anyway she had no white blood cells too and was therefore prone to colds flu etc. A cough for me was a major concern for her. She had weekly infusions at the local hospital of white blood cells which topped her up. An alternative was offered for self injection at home into the tummy maybe 3 x a day. You could see if this is an option. We did not try it
At the time it was a rare infliction and she was one of eight in the country.
BTW she did not die from this ailment as it was manageable
pm me any time or phone etc.................. best wishes
Very sorry to hear about your wife.
That’s my exact conditions XLA hypogammaglobulinanemia,as you state no white blood cells,probably one of the 8 also as I’m 50yrs now and I was one of the very first few....spent most of my first 10yrs in Northwick Park Hospital.